Andrew and I arrived back on Thursday and are right back
into the swing of things – even after just 3 months, it feels like we came back
home. On Saturday I went into the community to do CDCom, and I wanted to share more about it.
CDCom [“Chronic Disease in the Community”] is a program that DGH has been running for several years through which we bring
a month of medicine to patients with known chronic diseases in their
communities. Patients from two or three villages are mobilized by their village
health workers (VHWs) to the meet-up point, usually a VHW’s home compound or
local landmark like a grassy knoll or a water tank. We check “disease measures”
like blood pressure, urine glucose, listening for wheeze, and gather basic history
about symptoms, medication adherence, and possible side effects. If the patient’s
complaints seem more complicated than just a refill and he or she would benefit
from further work-up, we refer them to our chronic care clinic on Wednesdays or
Thursdays. If they need medication titration, we work with the chronic care
nurse and the attending on the wards to adjust the regimen.
We believe this service to be pretty unique and an valuable
service – delivering anti-hypertensive, anti-diabetic, anti-epileptic, and
anti-asthmatic medicines from a government hospital directly to patients who
are miles and miles away over bumpy, rocky roads. This saves the patients or
their caretakers a significant amount of time, as they don’t need to take the
day off from working in the fields or taking care of work around the house.
The program was free
for all participants for the first two years of its existence, but within the
last two years, DGH has established a small transportation insurance program
that has unfortunately introduced a fee for this service. “Tehaz”, as it is
called, is modeled on various private community transportation funds that pool
villagers’ money to be available to contributors to pay for transport to the
hospital in emergencies. DGH figured that it could operate such a fund that heavily
subsizes and discounts transport and allows proceeds to fund community health programs.
We are in the midst of evaluating whether the added revenue
is sufficient to warrant the time and money we invest in selling Tehaz (which
is short for Tegurira Ejo Hazaza, which means “Planning for Tomorrow” in
Rufumbira). It does make me uncomfortable as a healthcare provider in training
that we are excluding people who don’t pay. We do have a stipulation that the poorest 10% of people in a village
can join for free – but is difficult to determine. There are only a handful of
people on our roster of ~300 patients who are “exempt” and I am sure there are
many others who could benefit. My conscience is slightly eased when I remember
that all patients are welcome to come to KDH for free chronic disease care any
Wednesday or Thursday. But still, transportation for these patients, mostly on
foot, takes hours and means lost wages or valuable time working in their
“gardens”.
My colleagues over the years have integrated certain other
programs into our mobile chronic disease clinic, most notably malnutrition
services. VHWs screen for malnutrition in the community and invite newly
identified cases to join us at CDCom. They actually can refer the mothers
directly to the health centre, but many come to be enrolled in our community
nutrition program either before or after visiting the health centre. We were once
able to deliver RUTF (see: plumpy nut) straight to the communities, but a
process of centralization took away that perk –something to do with USAID
centralizing procurement of RUTF and not wanting us to be distributing it in
the field. As I understand it, the USAID program is attempting to ensure that
RUTF (called Rutafa here) is available at all or most government health centre
IIs, a small health centre usually staffed by one or two nurses with only
outpatient services.
To evaluate each child, we take their weight and measure
their mid-upper arm circumference (MUAC). We compare this to measurements we
recorded the previous month(s) and ensure they are growing. We refer patients
with severe malnutrition to the hospital to ensure they are receiving RUTF and
that they’ve received an HIV test and a medical evaluation. We also do very
abbreviated counseling about what foods to eat more of. We follow kids for
several months and make sure they are growing. If not, we refer them back to
the hospital for a medical and nutrition work-up.
In my first month of working on CDComs I met a grandmother
with a severely malnourished 6-year-old granddaughter. The child had recently
been sent from Kampala to Kisoro after one of her parents endured a long
hospital stay and ultimately passed away. The child was so thin and had a full
body rash. I suspected HIV and urged the grandmother to take her to the
hospital on the same day. The grandmother said, “Maybe tomorrow.” I didn’t know
what to do except to give her the money she would need to get there and back by
motorcycle “boda” – about $4. I figured this could help her get to the hospital
with less concern that she’d spend hours walking each way. We don’t have a good
way to evaluate whether patients “need” this money for transport, but I think
it’s a small price to pay to increase significantly the chances that these
patients get to care ASAP. Plus, any money they do have could be better spent
on school fees or food to feed the kids. We’ve been trying to establish a more regular “emergency
referral fund” for patients like this one, but we also need criteria for who gets money, if it's not everyone.
We have recently started having VHWs measure vital signs for
all of the children at these gatherings– especially respiratory rate and
temperature. They take a history of any recent illnesses, like fever, cough, or
diarrhea and feel for the fontanelle if the child is young enough. This is an
important opportunity for continuing education with our VHWs and also a chance
to identify sick kids. Children with malnutrition are much more likely to
become sick and die from pneumonia, diarrhea, or even malaria, than children
who are healthy.
In the coming months, we are looking to integrate mental
health as well as family planning patients into our CDCom practice. We will
keep you posted on how that goes!
Please share your thoughts, questions, comments with us on this or other posts.